AAHNA’s Engagement Priorities

Due to the scarcity of patient-centered engagement with Arab American patients and communities, the research priorities and  engagement guide are likely to be used by a number of practitioners and stakeholders across the U.S., with the ultimate goal of conducting CER. 

The long-term goal of this work is to establish a PCOR/CER program among Arab American populations that is responsive to their needs, experiences, and the socio-political context.

  1. To create a community of stakeholders called AAHNA: a sustainable community of patients, caregivers, clinicians, and researchers to facilitate PCOR/CER serving Arab American communities.

  2. To develop priorities in Arab American health research that include input from Arab American patients.

  3. To develop patient-centered research priorities and a research engagement guide that respect the unique sociopolitical and cultural needs of Arab American patients when engaging with researchers in person or online.

Research Engagement Guide

(forthcoming)

A priority for the Steering Group is to develop a Research Engagement Guide that will become a tool and resource for individuals interested in engaging Arab American patients in health research. This Research Guide will be developed in conjunction with our Steering Group members and will be informed in part by our survey.

Social Media Campaigns

Follow us on our instagram and twitter, where we will keep you updated on our partnerships, engagement process, and future research.

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Steering Committee Updates

  • During our August meeting, representatives from ACCESS presented information about the work that ACCESS does in Michigan and its relationship to our own funded engagement project.

  • During our June meeting, representatives from the Arab American Family Support Center presented results from their recent Community Health Assessment.

  • During our May meeting, the Steering Group received updates from all community organizations and patient representatives on the most recent developments in their communities. The Steering Group also discussed goals for the upcoming meetings, established ground rules, and discussed the potential for an in-person meeting in the fall.

  • The AAHNA steering committee convened for the first time since AAHNA’s inception where member were able to meet one another virtually, learn more about AAHNA’s mission and vision, receive a primer on patient-centered outcomes research, and received prompts for discussion at next Steering Group meeting.